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News
About DiagKNOWsis
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January 2006
DiagKNOWsis
becomes a newspaper column! "Every
Patient's Advocate"
Beginning Tuesday,
February 7, readers can learn tips and
information about empowering themselves to
be better patients by reading the Syracuse
Post Standard. Founder of DiagKNOWsis,
Trisha Torrey, will author the columns which
will appear on a biweekly basis.
Articles will be linked from this site as
they become available.
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October 2005
DiagKNOWsis
book being developed - In need of subjects
for interviews
A new book that will
expand on the information offered at the
DiagKNOWsis website is in the works.
With a working title of: DiagKNOWsis: Figuring Out What to
Do About What You've Got, it is now in
the outline and research stage.
Have you ever been
misdiagnosed -- or missed being diagnosed?
Have you spent time researching and
networking to get answers that might help
you make those tough medical decisions?
People with research
and misdiagnosis stories to tell are needed
for anecdotal information to be used in the
book. Real names will not be used, but
the author must maintain those records to
keep the book credible. If you are
interested in being interviewed for the
book, and
1. You have
previously been misdiagnosed
2. Have contributed to a re-diagnosis
because of information you have learned
yourself or
3. You have learned information on
your own that helped you and your doctor
make treatment decisions...
Then we would like to
hear from you. Please contact the
author at
mail(at)diagknowsis.org
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June 2005
Torrey Letter
Featured in MORE Magazine
In response to an
article in MORE Magazine, Trisha Torrey,
founder of diagKNOWsis.org submitted a
Letter to the Editor which has been
published in the July / August issue of the
magazine.
The letter
addressed an article written by Laurence
Gonzales in the May issue which described
women who trusted their instincts when it
came to making health and medical decisions,
and some very different outcomes that
resulted.
To
see the magazine's copy of the article, link
here.
To see a copy of the original letter (which
was edited for print), link here. |
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April 2005
diagKNOWsis.org
Receives HONCode Accreditation
In an effort to
separate solid and knowledgeable health
information as offered on the internet, vs
that information which may not be helpful to
patients and professionals, the organization
Health on the Net developed eight principles
to help consumers make that determination.
The results are an accreditation program
called HONCode, used worldwide by only those
organizations which meet the criteria of the
eight principles.
Those principles
are: Authority, Complementarity,
Confidentiality, Attribution,
Justifiability, Transparency of authorship,
Transparency of sponsorship and Honesty in
advertising and editorial policy. You
can learn more about the principles at
http://www.hon.ch/HONcode/Conduct.html .
diagKNOWsis.org
has now received that accreditation,
confirming it is a useful and credible tool
for health research. It has met the
stringent guidelines required by HON.
It takes its place among the 4,500 sites on
the net which have also been accredited.
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March 2005
diagKNOWsis.org
Launched to Provide Assistance in Diagnosis
Research
After being diagnosed with a rare form of
cancer in the summer of 2004, then proving
three months later that the diagnosis was
wrong, Trisha Torrey of Syracuse, New York
decided to empower others learn to do the
same kind of research she did to learn about
their diagnoses, too.
Learn more about
how this new resource came about, and how
you can contribute to its offerings at the
diagKNOWsis.org website:
www.diagknowsis.org/about.htm
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