Specific Conditions, Disorders and Diseases*

( Updated: 12/29/2011)

The following links have been provided by diagKNOWsis.org visitors.  If you have information about a specific disease or condition and would like us to link to it, please send us the information by filling out the submission form, or sending us an email.

	Learn how to empower yourself!     You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Health Care You Deserve) by Trisha Torrey
Master List	Conditions and Diseases
Rare Disorders	National Organization for Rare Disorders
Agoraphobia and Panic Attacks	A variety of resources and advice for those who suffer from these mental health challenges. www.agoraphobia-panic-attacks.com
Autoimmune Diseases (general)	Support group for anyone with autoimmune diseases can be found at www.wideberthamessageboard.com  and  a blog-type site with more information at:  www.notovertillthefatladysings.com
Brain Tumors	American Brain Tumor Association
Cancer	American Society of Clinical Oncologists
	HonestMedicine  (some behind the scenes information about everything from care to drugs)
Celiac Disease	For those diagnosed with Celiac disease, but want to eat a vegetarian or vegan diet:  Vegiac.com
Chronic Ailments and Caregiving	These free e-books are provided by Sangeeta Bhagwat at http://www.stormpages.com/sbhagwat/
Chronic Diseases	Excellent website for researching and learning about chronic diseases ranging from Crohn's Disease to Lupus to IBD. http://www.advocacyforpatients.org
Crohn's Disease	From Nursing Assistant Central:   100 Helpful Resources and Communities
Cutaneous Lymphomas	Cutaneous Lymphoma Foundation
Dry Eyes	Dry Eye Zone includes medical and support information
Fluoroquinolone Victims	Fluoroquinolone Advocacy For people who have had trouble as a results of taking flouroquinolones (antibiotics)
Hemangioma / Vascular Anomolies	www.NovaNews.org  The National Association of Vascular Anomalies
Interstitial Cystitis	http://www.ichelp.com/  Information and support about this painful bladder condition.
(Kidney) Dialysis Advocates	http://www.assndialysisadvocates.org/ Helps educate those who must undergo kidney dialysis.
LGD Alliance	Lymphangiomatosis and Gorhams's Disease Alliance
Lyme Disease	LymePA contains an excellent list of links to additional Lyme Disease resources.
MRSA (hospital acquired infections)	MRSA Survivor's Network (Methicillin-resistant Staphylococcus aureus)
Neuropathy and Peripheral Neuropathy	Neuropathy Action Foundation
Neurological Disorders and Stroke	National Institute of Neurological Disorders and Stroke
Sleep Disorders / Sleep Apnea	Link here for a comprehensive list of resources.
SMA: spinal muscular atrophy	http://www.fightsma.org  Learn more about the leading genetic killer of children under age 2.
X-Linked Hypophosphatemia (XLH)	X-Linked Hypophosphatemia (XLH) was also formerly referred to as VDRR or Vitamin D Resistant Rickets www.xlhnetwork.org
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